Cystinosis Research Foundation

Idea Hall’s work with the Cystinosis Research Foundation (CRF) has helped their annual Natalie’s Wish Gala become the number one fundraising event in Orange County, raising enough money for CRF to fund a clinical trial for a cure for cystinosis. This is no small feat. In the past, children with cystinosis, a rare “orphan” disease, faced certain fatality – but CRF is determined to change that. Driven by CRF’s mission, Idea Hall annually formulates a robust PR, content and social media campaign to actively connect the medical community with families in an informative, meaningful way. The campaign is rounded out by the development of a comprehensive semi-annual magazine – a continued pathway to education about the disease. Twice a year, Idea Hall writes, edits, designs and distributes the spring and fall Cystinosis Magazine issues to 15,000 key stakeholders worldwide. In 2021, the publication was the catalyst for driving nearly $25,351 for cystinosis research throughout the year. Our work with them has truly been a labor of love.