Case Study

Turning the Page on Rare Disease Awareness

How CRF Transformed Its Magazine into a Fundraising Powerhouse

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Services

Industry

A once-static magazine was transformed into a dynamic storytelling and fundraising tool — engaging 16.8K+ stakeholders and raising up to $30K per issue for cystinosis research.

The Situation

Cystinosis Research Foundation (CRF) is the world’s largest provider of funding for cystinosis research. The foundation’s mission is to give a voice to the 2,000 patients worldwide living with the disease as well as to educate and empower the medical community to find a cure aided by the research it funds. Prior to partnering with Idea Hall, the organization produced a biannual magazine to keep its small community in the loop on all the latest research, funding and events. However, the publication lacked a clear messaging strategy, structure and cohesive design. CRF’s goal was to transform this magazine from a disjointed compilation of information into a compelling, inspiring publication that aims to evangelize the CRF mission, serve as a powerful fundraising vehicle and give a greater, global voice to the rare disease community.

The Solution

Idea Hall worked with CRF to completely overhaul the Cystinosis Magazine, recommending an entirely new content and design strategy that enabled the magazine to work as a powerful medium to aid CRF’s mission and recognize their 20+ years of fundraising and research by communicating the foundation’s work and driving continued education about the orphan disease. Since 2015, Idea Hall has written, edited, designed and distributed the spring and fall Cystinosis Magazine issues to thousands of key stakeholders worldwide.

The Impact

Twice a year, the CRF community looks forward to receiving the Cystinosis Magazine to receive all the latest updates on cystinosis research, innovative new treatments, patient success stories and upcoming community events. As a result, the magazine has become a powerful tool for brand awareness, community engagement and fundraising for the Cystinosis Research Foundation. Each issue of the Cystinosis Magazine:

16.8k
STAKEHOLDER REACH

$30k
RAISES UP TO $30K FOR RESEARCH